Originally I created this page because I wanted to create a space on social media where I could post about my illnesses without getting grief for being "negative" or over sharing. I wanted a place on social media where I belonged and could freely share spoonie stuff. To be perfectly honest I didn't know what I was doing and selected a page that didn't really work for what I wanted to do. To be honest all of this was kind of an accident and somehow I ended up running a page for spoonies with over 2000 likes/ followers which was not what I set out to do. Six months into creating this space it became so big that I needed help from other spoonies to post content. Over the past three years I've had a lot of spoonies help me out as admins. I think I've had about 15- 20 people help me since 2014. It's pretty cool to run a page that so many spoonies from all over the world follow considering this was kind of made accidentally. I feel like this special page is an important responsibility and I'm proud of what this has turned into.
Over time I've tried to post unique content along with spoonie related memes, edits, jokes and articles. Some of the things my admins and I post about include sharing our personal experiences, doing disease write ups, and interviewing other spoonies in order to share their stories. In September 2017 this page went through a transition: I had lost all of my admins besides one and I felt really discouraged. I feel a responsibility to all the spoonies that follow this page but at the same time I wanted to get rid of my responsibility, that at times felt like a huge weight. My remaining admin reminded me how many people this page helped and urged me not to give up but she also admitted "we have to find help; we can't do this alone". I made a post in the hopes of finding a fresh group of spoonies to help me run this page and I picked 3 new volunteers. I quickly learned that these admins were excited and eager to help me make this page the best it ever was. The 5 of us all motivate each other and we've been working hard on creating amazing content. Because we work so well together and all enjoy writing/ making what I call "original content", I came up with an idea to make a blog and link it to our Facebook page. I decided that if we were going to put a lot of effort into writing things for the page that it would be cool to have a website where we could post all the writing we do so it would all be in one place. This blog will be a place where we share all kinds of things including disease write ups/ disease awareness, interviews of spoonies in the community, personal stories (admins point of view) and much more. Each of our original articles will be posted on this page like we always have but also on the blog. We hope that this blog will turn into a fun space where spoonies can come and get information and feel understood. We hope to make chronic illness, chronic pain and mental illness feel a little less lonely for you. Thanks for following us! ~Sarah |
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